Tuesday, September 3, 2013


I am completely exhausted.

Like totally at the point of no return ready to crash and not ever get up.

But I wanted to let everyone know how sweet baby Hazel Grace is doing.

She started her steroids yesterday (Monday) at about 6PM.  Her pressure had gone up to 42 and her O2 needs just kept going higher, so even though the antibiotics for the pneumonia were not done, there was no choice but to start the steroids.

They did a culture of the excretions from her ET tube at 11AM Monday and the preliminary results that came back today were negative, which is good.  Hopefully there will be no developments there and she will remain infection free for the duration of the steroids.

She will be on the steroids for about 3 weeks.  So far, her pressure has only been able to go down one point to 41, but I'll take anything and it is still very early in the course.

She was cranky and fidgety today due to the 'roids, but she is still tolerating her feeds and still gaining weight.
She looks wonderful and looks really really big!  I can't believe how big she has gotten!  She is 2 pounds 4 ounces, which means she is now a member of the Kilo Club!

They also did an eye exam today, but the results are not yet back.  Apparently, all the O2 that she is on can cause some sort of issue with her eyes.  Since we haven't heard back yet, we are hoping that means that there is nothing major to report.

Other than that, she's been pretty calm.  Just resting there looking cute!

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